Parenting Archive

Snake Oil

Emma has a new post where she mentions articles about possible future cures for such things as Down’s and Angelman’s. We can hope and pray. If someone came up to me with a magic potion and said it would “cure” Pearlsky, I don’t know what I would do. Really. It’s been seventeen years of her,

“Stress is when you wake up screaming and you realize you haven’t fallen asleep yet”

The stress level is about an 11. I was in touch with the people at Every Move Counts, they have a method of trying to get communication out of kids like Pearlsky. Some emails back and forth, but then no response to the last two emails where all I ask is if they know of

I suck

A short time ago I wrote this post about not talking to Pearlsky. I was actually shocked that I received so many comments and emails from other parents despairing how they don’t talk enough (if at all) to their disabled child. I am not sure if it made me feel better or worse to know that I

I’ll take two squab and a goose …

I am doing research for two posts (yes, I can do research, and no, I don’t always just babble) (“diagnosis” and community living) so for the moment … purely a human interest quick diversion, about an 8.6 on the wierd-shit-o-meter.