Emma has a new post where she mentions articles about possible future cures for such things as Down’s and Angelman’s. We can hope and pray. If someone came up to me with a magic potion and said it would “cure” Pearlsky, I don’t know what I would do. Really. It’s been seventeen years of her,
The stress level is about an 11. I was in touch with the people at Every Move Counts, they have a method of trying to get communication out of kids like Pearlsky. Some emails back and forth, but then no response to the last two emails where all I ask is if they know of
A short time ago I wrote this post about not talking to Pearlsky. I was actually shocked that I received so many comments and emails from other parents despairing how they don’t talk enough (if at all) to their disabled child. I am not sure if it made me feel better or worse to know that I
I am doing research for two posts (yes, I can do research, and no, I don’t always just babble) (“diagnosis” and community living) so for the moment … purely a human interest quick diversion, about an 8.6 on the wierd-shit-o-meter.