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“A boy’s best friend is his mother.” ~ Norman Bates

Another Mother’s Day. Ugh. These are tough. I have told you that my mother hates mother’s day … she does not understand why her friends get excited about the one day that their kid calls and says “I love you.” She gets that from me, and my sister, all year ’round. Well, she does understand

We are alive

In the last two weeks I have received a spate of emails asking if we are ok. I am not sure the answer to that, but we are alive, and actually, on a bit of an up swing. I have always tried to keep this blog about me and Pearlsky, inclusive. I don’t talk about

Drool, drool, drool …

Pearlsky drools. It is good and bad. How is it good? Her teeth are in great shape and the dentist swears it is the drool that keeps them “washed.” Who knows? But I do know about bibs, towels, being in public, etc. I had a great idea a while ago and did not run with it.

“Not the wiener thing” ~Ken Lilly

Judge Crater told me, under oath, he had no idea where the elusive blogger is. Jimmy Hoffa said if he told me he would have to have his friends kill me and bury me under Giant’s stadium. The Lindbergh baby didn’t say anything, but then he’s dead, so that could be why. D.B. Cooper gave

Home is where you park your wheelchair

Only one comment on the previous post so far … several emails about it though.  You think it’s tough to come up with a comment, try living the situation! Hence … I’m tired. And you know what, I am serious about what I am about to say … I want to run away. Far. No

First rule of holes: When in one, stop digging

I started down a hole a while ago. Not so much digging, but either being dragged or following, I am not sure. When told “up” was “down,” I believed it, for why not? I can be a trusting soul when it comes to things not involving Pearlsky or David. When told by one you love

Who knew?

Rare Disease Day is an annual, awareness-raising event coordinated by EURORDIS at the international level and National Alliances of Rare Disease Patient Organisations at the national level. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Feel free

Prayers needed

Lord knows we all need prayers. Often. Spare a moment and send one for Chris, okay?