26 May 2014
Marriage is a wonderful institution, but who wants to live in an institution? ~Groucho Marx
(Feel free just to skip to the third and final video of my interview at the end of this post.) Within two or three months of Pearlsky’s birth we were clearly told that marriages with kids like her just don’t stay together. Many people told us this, the pediatrician, other doctors, even clergy and friends.
24 May 2014
Night Terrors
Fear of the night seems to be ingrained in us humans. The dark, the unknown. But for those of us in this community, I believe it takes on a different dimension. I remember being told when Pearlsky was leaving the neonatal intensive care unit that kids “like her” typically die at night. Sometimes it is
23 May 2014
“It’s unfortunate that in an interview sometimes things can seem so black and white.” ~Gisele Bundchen
Don’t ever go into a room alone with a personable, intelligent, challenging, well-educated videographer / interviewer … you never know what will happen. And it may happen in three parts. Here is part one.
09 May 2014
“A boy’s best friend is his mother.” ~ Norman Bates
Another Mother’s Day. Ugh. These are tough. I have told you that my mother hates mother’s day … she does not understand why her friends get excited about the one day that their kid calls and says “I love you.” She gets that from me, and my sister, all year ’round. Well, she does understand
01 May 2014
“God never ends anything on a negative; God always ends on a positive.” ~Edwin Louis Cole
The title of this post is kind of funny (no, not “ha ha” funny), a quote coming from the founder of the Christian Men’s Network who died with cancer and a broken back. I would say that … well … yeah, God does end some things on a negative. Speaking of negatives … I am going to
24 Apr 2014
We are alive
In the last two weeks I have received a spate of emails asking if we are ok. I am not sure the answer to that, but we are alive, and actually, on a bit of an up swing. I have always tried to keep this blog about me and Pearlsky, inclusive. I don’t talk about
21 Jan 2014
Half truths and exhaustion
I noticed a small red patch near Pearlsky’s eye yesterday. No one knew why it happened, does not really matter. No big deal. This morning it was more of a bruise, lucky she does not have a black eye I guess. Whatever. Pearlsky did it to herself. It is no big deal. She went to school.
10 Jan 2014
Add it to the list …
I still really, really, really need to get an RV modified for Pearlsky and me and friends. And my plans are actually coming together somewhat. I did find this one … Clotho says that if it comes with those shoes, go for it! There is this woman I was supposed to marry (no, not the