If there is any one secret of success, it lies in the ability to get the other person’s point of view and see things from his angle as well as your own. ~Henry Ford How empathetic are you, and does it really matter? During an argument, do you actively try to understand not necessarily the
Today was pretty much a normal day. Today I gave Pearlsky 11 different medicines in 23 doses, during seven different “med times.” Knowing that this number has varied since birth, I calculate that I have given her approximately 84,500 does of medicine. I changed her diaper five times today. Over her lifetime, accounting for time in school
Emma has a new post where she mentions articles about possible future cures for such things as Down’s and Angelman’s. We can hope and pray. If someone came up to me with a magic potion and said it would “cure” Pearlsky, I don’t know what I would do. Really. It’s been seventeen years of her,
The stress level is about an 11. I was in touch with the people at Every Move Counts, they have a method of trying to get communication out of kids like Pearlsky. Some emails back and forth, but then no response to the last two emails where all I ask is if they know of
A short time ago I wrote this post about not talking to Pearlsky. I was actually shocked that I received so many comments and emails from other parents despairing how they don’t talk enough (if at all) to their disabled child. I am not sure if it made me feel better or worse to know that I
I am doing research for two posts (yes, I can do research, and no, I don’t always just babble) (“diagnosis” and community living) so for the moment … purely a human interest quick diversion, about an 8.6 on the wierd-shit-o-meter.