12 Sep 2009
“When you’re finished changing, you’re finished.” ~Benjamin Franklin
Two issues, neither directly about my daughter. Do you like the new look of the blog? Did you see the tab above that says “Gallery”? Go add your picture!
11 Sep 2009
“At any given moment, public opinion is a chaos of superstition, misinformation, and prejudice.” ~Gore Vidal
Claire has a great post here about bringing her daughter, Sophie, to a birthday party and, well, it does not turn out great. I gave in to “advice” from people who think they know better and from people who think all disabled people find pleasure in being surrounded by a crowd because it’s “normal”. We
10 Sep 2009
“Walking with a friend in the dark is better than walking alone in the light.” ~Helen Keller
I never had much fear of the dark. No love affair, mind you, but no real fear. Well, there was the night after I saw The Exorcist when in high school and stayed up all night because I was not going to close my eyes. And the night a couple of years ago that some
07 Sep 2009
“Most of American life consists of driving somewhere and then returning home, wondering why the hell you went.” ~John Updike
It’s a three day weekend, Monday is a federal holiday. Just sitting at home, minding my own business, Sunday night, 9:00 pm and the phone rings. I do not know the woman, but she is with the school bus company that has been horrendous over the years. Hi Mr. Smith, this is Brenda with XYS
05 Sep 2009
“He who has a why to live can bear almost any how.” ~Friedrich Nietzsche
It’s a three day weekend and my friends are all out of town or otherwise occupied. It’s me and her, “she who must be obeyed,” my daughter. Good time to sit back and contemplate: So, God, why did you mess up my kids so bad? Is this a cosmic joke, no god, just fate, just
05 Sep 2009
“Never eat more than you can lift.” ~Miss Piggy
I must say that for years I have had nutritionists on the level of social workers. Okay, maybe a step above, but it is a very small step. I will post another time on the WIC nutritionists I had to deal with when my daughter was younger. The doctors pretty much agree that my daughter
02 Sep 2009
“Your children need your presence more than your presents.” ~Jesse Jackson
As mentioned, my son is also severely disabled. My ex and I have joint custody and he lives at a residential program in another state, about two hours away (not my choice). I needed to revisit an issue today and this is the third time. Some documents came from the school part of his program
31 Aug 2009
Failure to parent
My son was born two years after my daughter. She was still undiagnosed, he seemed fine, at first. He nursed, although not that well, eat a bit, when pushed, and was growing. At eight months there were some seizures. As with his sister at that time, still undiagnosed. At about a year old, the doctor