16 May 2013
Of Retarded Mice and Men
This post is different. This blows my mind, does involve Pearlsky a touch indirectly though. But it’s really cool. So, if you want, keep reading, hit the “Read more” button …
14 May 2013
Not all mushrooms are poisonous
Today Angelina Jolie told the world that she had a preventive double mastectomy. It turns out she has a certain mutation of the BRCA1 (BReast CAncer) gene that caused her doctors to say that she had an 87 percent risk of breast cancer and a 50 percent risk of ovarian cancer. Hence the preventive removal of her
13 May 2013
Reevaluate, for the first time
As every year, I received an invitation to Pearlsky’s classroom for a Cinco de Mayo lunch. They do a special family lunch a few times a year. I go. I hate going. It is tough just walking through the high school. The hallways are always full of normal kids. I have to make my way
12 May 2013
“There’s no bitch on earth like a mother frightened for her kids.” ~Stephen King
I always seem to write a Mother’s Day post. My mom hates the day, she has children that treat her right and tell her they love her all the time, we don’t celebrate her or our relationship just one day. That said, I did send flowers and “signed” everyone’s name. A couple of times this
10 May 2013
What’s with all the crap?
I get a call from school, Pearlsky seems upset. The aide thinks it may be stomach related but is not sure. I go to school and check her out, and quite frankly, I am not sure. She is obviously uncomfortable and does seem every so often to be straining, hence maybe she is a bit
01 May 2013
First rule of holes: When in one, stop digging
I started down a hole a while ago. Not so much digging, but either being dragged or following, I am not sure. When told “up” was “down,” I believed it, for why not? I can be a trusting soul when it comes to things not involving Pearlsky or David. When told by one you love
27 Feb 2013
Who knew?
Rare Disease Day is an annual, awareness-raising event coordinated by EURORDIS at the international level and National Alliances of Rare Disease Patient Organisations at the national level. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Feel free
12 Feb 2013
“Heaven better be awesome” ~Kitz
Occasionally the topic of the severely disabled and abortion comes up here. We will NOT have any real discussion on it though. There was this post surrounding an email I received a few months back. Yesterday, a comment was added to the thread, this comment. It is obvious that the commenter, Kitz, and I, come from