09 May 2012
I have no opinion either …
So, no comments on the new look of the blog?
Ok, then, how about comments on this? Not sure how I feel about it, but it is powerful.
So, no comments on the new look of the blog?
Ok, then, how about comments on this? Not sure how I feel about it, but it is powerful.
Ok it looks great..but I am not pleased that the previous/ next post button is gone
I hope this helps
Good point, I just added them and will make them prettier soon.
Wow I wish emma and keiths doctors responded that quick ..
Thanks
The new look is much cleaner, I approve, not that it matters. As far as the video I just don’t know what to say. I would say I wish funding was available for research into all conditions, however, it would be more accurate to say I wish everyone was born healthy and “normal” and there was no need for research funding.
It’s very … brown.
Did so – on the post titled “need help”. But really, you DO like brown don’t you?
This is not my initial reaction to the video as have seen it prior more than once. Well done for communicating the message and so prompts noticeable emotion, in most people. I’m not most people but that does not mean I oppose a parent with a cause.
To tell you the truth, I don’t like the relentless brown, but I do like the clean look and the masthead is very cool.
As for the video, I like it. I know the “Fix” part is going to drive some people insane, but what’s to not like — facts, poignancy, a great song? As the mother of a child with epilepsy, I always cringe when they throw up the autism statistics — autism research gets far more funding — vastly more funding and publicity — than epilepsy which affects 1 in 26 people and is the most common neurological disease in the world. Maybe I need to make my own video?
Would like to see a video from you, Elizabeth.
The video made me realize that I forgot to do the poster project for the video you’re making, Elizabeth! Is it too late??
All in favor of Elizabeth doing a video say “aye”!
AYE
Aye aye, Captain!
Aye aye do the video
You already know what I think about stuff like that. About holding up a developmental condition against the certain – and near-immediate – death posed by AIDS or leukaemia. About the idea that you can ‘fix’ an inherent part of someone – about prioritising ‘therapy’ higher than parenting, care, support…
Fuckit. You really do already know.
I like it! I have a question; do you have a button that I could post on my blog so others can find your page?
This is lazy commentary, but ditto what Becca said.
Also, when he held up the card that said “She may never be normal, but I can guarantee that she will be….” I envisioned the next card to read “Happy” (although we can’t guarantee anyone’s happiness). Instead, it said “The best Bianca she can be.” For me, that didn’t sit well.
OK folks, how about this earth tone green. Better?
I vote for the brown.
I love the earth tone green although I’d call it closer to blue. Beautiful.
And NO, IT’S NOT TOO LATE TO SEND IN YOUR POSTER. I’D LOVE MANY MORE! See my blog for instructions.
Great! Thanks, Elizabeth!
Single dad I prefer the BROWN. That said as a parent we can on some level ALL relate to this dad’s pain, and I know I can personally relate to the best Bianca part. I remember being 23 when my baby was diagnosed (1 of 12 known cases in the world) and that burning desire of “fixing” her, well I soon realized that “fixing” was out of my hands, but I decided to FIX the people around her. I made and continue to make sure that she is treated as a PERSON, that she is respected and not pitied and that although she can not speak for her self and is severely disabled I make sure that others know her voice counts! I make sure that she knows that SHE counts, and that the people that truely love her hear her voice in our hearts.
I prefer the brown. I do like how you now show the number of comments at the top of each post as well.
Also can you make your banner at the top link to your home page? Not sure about the red. I still liked the brown better.
Well, as an parent of a child with ADHD, I liked the first part of the video but not the last part. I don’t want to “fix” my kid; I just want to help him to develop and thrive in a non-ADHD world using evidence based solutions. The video did NOT make me want to donate money for autism; his argument was not compelling. As others have mentioned, there are many, many childhood conditions that deserve funding. I don’t see how you can even compare autism with leukemia, or why you would want to.
And if we’re going to argue about whose disease deserves the most funding, ADHD affects one in 20 children and has a devastating impact on the individual and society when unrecognized and untreated. But I would never compare it to leukemia and AIDS and demand that ADHD get more because more people have it.
Casting a vote for the green but with full disclosure that I did not in fact ever see the brown. I think it’s a fair if not fully informed vote. I’ve never eaten Hakarl either but I can say with certainty I would rather have a steak.
I frankly didnt notice the changes; I gues I could be blog-blind but I think its just more that I am emotionally engrossed in your blog’s contents. There’s ALWAYS food for thought. But I have appreciated how easy your blog is to navigate… regarding the video, I’m always moved when I see a parent “out-there”. I havent found that strength yet within me…however, I dont get much from comparing statistically suffering. I’ve been told my son has a chromsomal disorder which, to date, has only been documented 21 other times. If I follow this line of reasoning, I’m just SOL with funding and research then…All suffering is suffering. Period.
Ooo, I really like the red! Looks spiffy. A polite request to consider returning the top row of links to black-on-white or black-on-light colours please? My brain does weird shit looking at white-on-dark.
I’ll say the red is appealing, too. But I think a better sub-color would be a light blue (as I was advised at my last request on color of my defunct blog.)
I wish the dad had also stated the case for increased funding, instead of funding cuts, for services for people who have autism and other developmental disabilities. Research to finding a cause or cure is fine. But that’s years away. Meanwhile our kids are growing up, and we are growing old, and what will we all do, while the country proposes saving the military budget by cutting social services spending?
Of course I vote for purple….