10 Feb 2009
Birth
The birth of a blog. Reminds me of the birth of my daughter in the early 90’s. Bizzare how that works, no?
About an hour after she was born she was rushed to the neonatal intensive care unit. A bit later I called my Rov.
The Lord only puts on your plate what you can handle.
Thank you so much, Lord.
What is a ‘Rov’?
A Rabbi, literally a teacher.
You’ve got me hooked with the first entry.
First I would like to commend you on being a “stand up Dad”. There are so many men these days that “make ‘um but won’t take care of “um…. and you, having more challenges than most, makes you even more of a hero in my book. I hope that you will not be upset or turned off by what I am going to say but this is my opinion and mine alone. Take what you will and leave the rest but please know that it is said with genuine love. I feel that when God gives us children that are “less than perfect” in society’s eyes, it is for a reason.. I believe that we are spirits before we become human and the the spirits of you children chose to come to earth to live as they do either to learn something that they could not learn in any other circumstance or to teach those around them lessons that they desperately need to learn. I also believe that what a “special” person is denied in human existence is counteracted by their high spiritual connection with God. So no matter what suffering or struggling they may appear to have in human form, I believe that they can see and communicate with God beyond what a “normal” person can and all they know is love, God’s love and some human love but I truly believe that they know something that we don’t and we, have to wait until we die to find it out and these “special spirits” can help us along a path that perhaps we never would have found if not for their life on earth.. God bless you and your children. Finding joy in a not so joyous world is something to relish. Thanks for listening.
I’ve got an autistic son and just had twins and they have same issues. Nice. Thanks for that…again. People don’t understand unless they have the same cards we do!
I don’t read blogs, but you have a great way with words, so this will be my first. Thanks for the breath of fresh air.
I have a severe and profound 33 year old daughter who has Retts Syndrome…We share many issues…
Geneva we don’t say we have a severe and profound daughter asit isn’t people friendly. It also undermines them and makes the child a subhuman.
Ramona it’s not autistic son as that makes the child be less human. It’s just not appropriate either.
just subscribed to your blog, saw a quip on aol and was so moved. i also have a disabled daughter, apgar score of nines and no reasons after testing what “caused” her disabilities. my daughter, harmonie, was born in 1979 my first born. i just couldnt wait to be a mom, its all ive ever wanted to be! but couldnt figure out why this child couldnt connect with me, couldnt breast feed, didnt like to be held, made me feel like a failure…..the preverbial “what is wrong with me, im a terrible mother! what am i doing wrong?” of course its a long story, i dont have to tell you. read an article years later about women with low thyroid hormone levels give birth to children with low IQs….of course my thyroid disease wasnt detected until AFTER she was born, but probably had it since puberty. that killed me! but now she is a grown woman and is outgoing, social, appropriate, has a million friends and even has a nice boyfriend. can she read a novel, no, balance a checkbook, no, but she does everything for herself and im just the limo driver to all her parties! I DO believe Harmonie has changed my life and my 2 other childrens lives, we have a different perspective on the world. we have more tolerance, more patience, we give more and love more. i have been in the company of her friends and we can learn a lot from them. to them it doesnt matter how much money you have, what kind of car you drive or purse you carry, who has pimples, who is skinny and who is overweight….they love each other anyway! are some days hard, yes they are some are harder than others, but sometimes i think im alone and then i listen to other parents complain about their NORMAL children and realize ok were no so different. certainly my daughters issues are not as serious as your childrens issues are but creating this blog was a great way of connecting and giving all of us a place to talk and learn from each other. i look forward to following your blog and i hope that we all can support each other!
I can only imagine how scary that must of been for you. I love the quote "The Lord only puts on your plate what you can handle." I hope everything is working out great for you. In times like these everything can seem so stressful and scary. Just know there are people out there that care and could possibly help.