Had a few hours of driving to do today. Not the easiest drive, not too bad. Thank goodness for roadside McDonald’s and Nathan’s, no?
Pearlsky’s mom calls during the drive, we talk for about an hour. She absolutely does not know of this blog … but has all the worries and insecurities that we all do with respect to our kids. I re-assured her, in all honesty, that she has become an absolutely wonderful mother to David, visiting often, overseeing his care, attending all meetings, etc. At least the distraction made the ride easier.
Pearlsky’s one on one aid wrote an email to the school administration about how livid she is about the day that the nurses did not give Pearlsky her amino acid and did not tell anyone. When the Attorney General’s Chief of Civil Rights got wind of the existence of said email (I wonder how she heard), she told me she wanted to see it. She has. Here is an excerpt, written by the woman who has given the amino acid the last four years, then the nurses did for a few weeks and then …
On Monday (11/1/10) I brought Pearlsky to the nurses’ office at 2:30. I left her with the nurse to get her meds and amino acid while I filled out her daily communication form. When done, I handed the communication form to the nurse, who initialed it and returned it to the wheelchair. Upon dropping Pearlsky off at home I was asked by her father if anyone had given Pearlsky the amino acid. I stated that I thought that the nurse had. He informed me that he had received a phone call telling him that the nurses refused to administer it. He asked if they had informed me of this. They did not.
They gave her the other meds, refused to give her the amino acid, then returned her to the other woman who used to give the amino acid, and said nothing. Just another nail in the coffin.
Speaking of which, tomorrow I bury my father, in a coffin made without nails.
“Baruch dayan emet,” Blessed is the true Judge.