Here comes the judge
Had a few hours of driving to do today. Not the easiest drive, not too bad. Thank goodness for roadside McDonald’s and Nathan’s, no?
Pearlsky’s mom calls during the drive, we talk for about an hour. She absolutely does not know of this blog … but has all the worries and insecurities that we all do with respect to our kids. I re-assured her, in all honesty, that she has become an absolutely wonderful mother to David, visiting often, overseeing his care, attending all meetings, etc. At least the distraction made the ride easier.
Pearlsky’s one on one aid wrote an email to the school administration about how livid she is about the day that the nurses did not give Pearlsky her amino acid and did not tell anyone. When the Attorney General’s Chief of Civil Rights got wind of the existence of said email (I wonder how she heard), she told me she wanted to see it. She has. Here is an excerpt, written by the woman who has given the amino acid the last four years, then the nurses did for a few weeks and then …
On Monday (11/1/10) I brought Pearlsky to the nurses’ office at 2:30. I left her with the nurse to get her meds and amino acid while I filled out her daily communication form. When done, I handed the communication form to the nurse, who initialed it and returned it to the wheelchair. Upon dropping Pearlsky off at home I was asked by her father if anyone had given Pearlsky the amino acid. I stated that I thought that the nurse had. He informed me that he had received a phone call telling him that the nurses refused to administer it. He asked if they had informed me of this. They did not.
They gave her the other meds, refused to give her the amino acid, then returned her to the other woman who used to give the amino acid, and said nothing. Just another nail in the coffin.
Speaking of which, tomorrow I bury my father, in a coffin made without nails.
“Baruch dayan emet,” Blessed is the true Judge.
May he rest in peace. My thoughts are with you. I hope you and your Mom are doing OK.
Hopefully your ex at least expressed her condolences during the hour long phone call.
She burst out crying when I told her. Yes, she said all the right things. As a matter of fact, I may start the eulogy with this …
“My ex wife always said that if she left me to go to mom and dad, it would be mine that she goes to.”
Sucks man. Hope he went out easy.
SD, I’m so sorry to hear about your father. I know I speak for my whole family in sending you deepest condolences. We are busy right now with our own family event but I will pass along the message that you are in mourning so that we can try to call. Thinking of you and wishing you comfort in this trying time. As we traditionally say, “May God comfort you among the mourners of Zion and Jerusalem.”
My sincere sympathy, SD. If there is anything I can do for you and Pearlsky in the context of our online relationship please let me know.
May your father’s memory be for a blessing. Your parents sound like truly wonderful people.
I’m so sorry, SD. We buried my grandpa last spring – my first Orthodox funeral. I love what Beuriah said, so I’l just second that and leave it there. Peace to you and yours.
I’m so sorry about your Father. My thoughts are with you and your sweet Mom.
It’s good that you have other people to back you up on all this stuff about P. Especially in writing!
Peace to you an your family.
Baruch Dayan Emes. I also lost my father quite suddenly and I can empathize.
“May God comfort you among the mourners of Zion and Jerusalem.”
Very sorry for your loss, SD. I hope today goes as well as possible. Sending positive thoughts to you and your family.
Thinking of you and hoping you are ok. Sorry for your loss.
My condolences to you and to your family. The loss of a father is a life-changing event. And yes, as, like you, a single parent of a severely handicapped daughter, I know how fraught with special meaning that is.
OK – I am a bit behind here but catching up and actually crying. Losing a parent is so difficult – whether “expected” or not. Having to continue to be strong in the face of adversity adds a challenge that we do not always want to face (like Mom said – we can go forward or we can fuck up – gotta love the Momma!).
I truly wish you peace in this journey – as hollow as it may sound, I hope you know it is from the heart.
My deepest condolences to you and yours.