“I’m tired of fighting. I’ve always known that I can’t be an action star all my life.” ~Jackie Chan
I am not sure what to fill you in on first …
This weekend I found out that my next door neighbor works directly with the State’s Assistant Attorney General for Civil Rights. They are buds! Yes, I sent a long email that contained the official complaint against the Nurse Coordinator of School Health Services and lots of proof of negligence and civil rights violations.
This morning we went to the big city children’s hospital for the urinary reflux testing. Do I tell you about the fact that there was no one to pick Pearlsky up and put her on the ultrasound table … no one for a two person lift, no lift, nada. Do I go into how they did a renal ultrasound (kidney, bladder) while she was in her chair?
No, maybe I’ll tell you about the other test that they did not tell us about, that I had to walk all over the hospital with Pearlsky to go to a test where the lady looked at me and said …
She’ll have to pee on demand. We have a special toilet for her to sit on.
You’re shitting me, right?
Good luck (I said, while laughing).
They cancelled the test. Have I told you I hate idiots?
I can tell you the punch line that Pearlsky’s kidneys have both grown proportionally (one was smaller due to reflux / infections in the past). One still probably only works 33% as opposed to 50%, but they both look healthy. The doctor thinks maybe the many UTI’s are from her bladder not fully emptying … but no way to know. Thanks, big city hospital doc. (All in all, very good news)
Or maybe I should tell you about the rather long email I got from the Nurse Coordinator of School Health Services this afternoon. The one she copied the Assistant Superintendent, the doctor who consults to the district, the nurses who work for her, Pearlsky’s teacher, everyone. The same email that I responded to by interspersing my remarks within her sentences, twisting her words back on her, making her look like the complete and total ass she is?
Or I can tell you about the email she then sent two hours later, all of the sudden calling me “Mr. SingleDad,” and ending with the words “We will make every effort to work with you on this.”
I am tired, totally, freaking exhausted and I thank god I’m not a miner.
If we’re really good will you let us read the nurse email and your comments? And it’s always good to have friends in high places. Glad to hear the test results were good, even if the hospital lacks common sense.
I’m so sorry that you’re — well — enduring these things. I’m just so sorry and wish that I could help in some way. A laugh, maybe? The first school nurse that I ever encountered here in crazy Los Angeles, the head of the whole shebang was named Dr. Kwok.
Emapathising with your frustrations and tiredness SD. Sometimes…most of the time it seems to me….there are just too many things to fight against in our world ( those affected by severe disability I mean)..indeed only the superhuman could sustain so many fights. In order to keep sane I have to try to let many things go over my head, choose my fights. Easy to say, I know. But sometimes it’s about survival….
Thank you for sharing ( that phrase always sounds so cliched …but I mean it).
Hope you get some rest and your peace of mind back soon.
Didn’t mean to suggest you don’t choose your fights well………thank god for people like you who can fight. Thank you for fighting, in some way you fight for all of us.
You see, that’s why I don’t leave comments. I’m ususally so tired it never comes out right!
Ah, crap. I got a little lost and have been looking backwards trying to remember. I haven’t yet had to deal with a student nurse, and my sister pays privately for her son’s aid who is a nurse so it’s not a cross I’m familiar with.
The nurse coordinator is different from the woman at the Dept of Public Health, right? That ally hasn’t turned against you has she, or did I miss something with the switch in the feed? I thought I read backwards fully.
Anyway, the 33% freaked me out, but I’ll take your word for it that it’s good news.
I’m glad you’re not a miner, too. That’s a tough enough story without you in it.
I take you last-sentence thanks to mean you are feeling much better, and obviously up for a match.
Hugs to girl with goop on her back. US in ‘sitting’. Yea, right.