We are alive
In the last two weeks I have received a spate of emails asking if we are ok. I am not sure the answer to that, but we are alive, and actually, on a bit of an up swing.
I have always tried to keep this blog about me and Pearlsky, inclusive. I don’t talk about my personal life, that is not what this is about. The past year though, that life had gotten out of control for many reasons. And that has thrown everything off. I am starting to feel like it is back under control. Sort of. Kind of.
In brief, I got very depressed. Not clinically (or so my machismo says), but probably close. I was pulled down a rabbit hole, albeit I went willingly. On top of that was the incident with Pearlsky at school (more on that in a bit), stuff with my immediate family, my health, work shit, and you name it. All of that AND the usual Pearlsky stuff that this blog is made of.
Several things have come together to pick me up. I have started two new business ventures, my primary one started failing because of several issues (some in my control, several not). I now have two other ventures, and wouldn’t you know it, the old mainstay just got two new contracts and is back on the upswing. I will be talking about the new ventures; they very well may involve all of you. And, of course, special friends have helped.
I was searching for a book for my step daughter (don’t ask, and no, you don’t know about her, and no, she is not really a real step daughter, but me and her feel she is, so there) and when I bought it for her, my first thought was that I should read it as well. At this point I have purchased six copies and gave it to people who have all thanked me. If in your life there is anybody whose actions have an effect on your actions or behavior, then it is a book for you. If someone else (typically a spouse, could be a parent or child, close friend, etc. and often addicted to something) does stuff that makes you crazy, paralyzes you, makes you worry above and beyond, then you may benefit. Just putting it out there … Codependent No More.
The school district agreed, actually suggested, getting Pearlsky into an adult program as soon as possible after the incident last summer. We visited several and liked two of them. The school sent “packets” to them both. At first there was great interest and all looked like a “go,” then bizarre silence. The programs would not return calls or emails. From me. From the school. From my advocate. From my big time lawyers. We have no idea, and if you are saying “what the fuck?” … so are we. I am meeting with the lawyers next week. Will keep you informed.
No, no R.V. yet, but a touch of movement on that. More soon.
I’ve asked here about those of you dealing with peripheral neuropathy since there is a connection with it and the amino acid Pearlsky needs to survive. Now it is associated with other issues, other kinds of nerve pain, and even with ALS. If you have any of those, feel free to contact me … I have information for you. Really. Especially ALS (Lou Gehrig’s disease).
I mentioned some new businesses. I have started a special education advocacy group. I have a team of people (six so far) with vast special ed experience. Most of the laws and regulations are based on federal law (IDEA, ADA, NCLB, etc.) and the state laws and regulations are easy to find. If you are having issues with your school, you may want to let us know … never know what we can do for you. Let’s face it, I can write a pretty good email.
So yes, I am back, I hope. I miss this blog terribly. And to tell you the truth, I have been missing me terribly.
I can beat this. I will. Thanks for caring. Especially those the last few weeks, sorry I did not return the emails, I will do better. But again, thanks. It means more than you know.
It is good to hear from you. SD as part of an advocacy group = AMAZING! I am pulling for you on the RV front.
And we make our own families, your step daughter is lucky :).