Author Archive
11 Nov 2009
Caveat emptor – Let the buyer beware
A quick rant … you know how I hate DME companies. We needed some medical equipment and got it via Sleep Healthcenters (with whom I have now had multiple bad experiences) because they were recommended by the doctors. A bill came today. It turns out they charged my insurance company $522 of which insurance paid
07 Nov 2009
“… the minority possess their equal rights, which equal law must protect, and to violate would be oppression.” ~Thomas Jefferson
Forty nine states mandate scholastic testing for students under the “No Child Left Behind” (NCLB) laws. Only California allows a parent to write a note and exempt their child, but the law discourages teachers and administrators from mentioning this to the parents. Pearlsky has no communication at all. Period. How can she be tested? The
02 Nov 2009
Making the grade [updated]
This post is written a bit ass backwards, but I think that makes it clearer. The events happened her first year in high school. At the end of Pearlsky’s first quarter of high school, her report card came home. Strange in it’s own right, but ok. Turns out, she got all A’s! Ah, the proud
01 Nov 2009
Social Responsibility?
Do we as bloggers have social responsibility? Blogging is an outlet, it can also be a manifestation of one’s desire for exhibitionism, but do we do it to help others or just ourselves? I think it is more complex when the blogging is for a smaller well defined community. I sent an email to a reader
27 Oct 2009
Ich bin ein cripple
There are two concepts that are important in the on going discussions of growth attenuation (aka Ashley Treatment) as well as the lives of the severely disabled in general. What follows is one father’s opinion.
26 Oct 2009
Diagnosis … our saga
(I hope you read part 1 of “diagnosis” here.) When Pearlsky was born her apgar score was 9, so much for standardized testing. She was in the NICU within hours for a temperature regulation issue, but that resolved quickly. Then the CAT scan, genetics, neurology, CSF (spinal tap), etc. As mentioned, a week in the
21 Oct 2009
An assortment of nothing
Today is Pearlsky’s birthday and her class is having an outing to an organic farm. Don’t ask what that is, I have no clue. Anyway, I sing ‘Happy Birthday’ while getting her ready (why does she laugh hysterically when I try to sing?), put her in her chair, and … notice that one wheel is