Uncategorized Archive
20 Sep 2011
Cripples, Idiots, Lepers, and Freaks: Extraordinary Bodies / Extraordinary Minds
(Not about me nor Pearlsky. Things have been tough, really trying to get back to the blog. Stick with me, please.) Thursday, March 22 – Friday, March 23, 2012 The Graduate Center of the City University of New York Could disability be, as Susan Wendell writes, “valued for itself, or for the different knowledge, perspective,
31 Aug 2011
“I wish I could hug you, but I don’t think I’m allowed” ~Clare G.
Once Pearlsky became 18, she started to receive Social Security Disability which helps pay for her stuff: food, clothes, medicines, stuff not covered by insurance, etc. She gets $804 a month, this is calculated by such things as the fact that she does not work, she is blind (legally), she lives with her absolutely wonderful
17 Aug 2011
And then there was one …
Social worker, that is. One that I could, I guess, like. You absolutely must read this. Seriously, if you will ever deal with a social worker, read it. I’ll go so far as to say, if you ever want me to allow you to read my blog again, go read it! She is in our
29 Jun 2011
I read the news today, oh boy …
This article is in many papers around the world today; I am reproducing the BBC News version in this post. Not sure how to respond, other than to smile and pass the egg rolls. China mother is jailed for killing paralysed twin sons A Chinese mother has been sentenced to five years in jail for
27 Jun 2011
“Your knowledge of what is going on can only be superficial and relative.” ~William S. Burroughs
Life is completely relative. Yeah, I have it tough, two severely disabled kids, zippo communication, epilepsy, evil school nurses, no spouse, blah, blah. You know. Others have it so much easier. Let’s see … Claire, an older mature normal kid, her disabled kid has some communication, she has a spouse to help, and is into
18 Jun 2011
Pre-F day
A few years ago I put up a personal ad on a dating site and it turns out that the day before Father’s Day a wonderful woman responded, we dated for many years. She had not met Pearlsky before the first night she stayed over (logistics), though she knew all about her. The next morning
09 Jun 2011
“In matters of style, swim with the current; in matters of principle, stand like a rock.” ~Thomas Jefferson
One of the smartest, most astute, intelligent and wonderful readers of all time just sent me this in an email: I’m doing a post on dads for Father’s Day on why dads of kids with special needs rock, with quotes from amazing dad bloggers. Aka you. Game to share a quote? It can be as