Today Angelina Jolie told the world that she had a preventive double mastectomy. It turns out she has a certain mutation of the BRCA1 (BReast CAncer) gene that caused her doctors to say that she had an 87 percent risk of breast cancer and a 50 percent risk of ovarian cancer. Hence the preventive removal of her
As I mentioned, I am writing a post for a main stream publication on Growth Attenuation, also called the Ashley Treatment. (see here if you are not familiar) I just submitted it, I will keep you informed. The reasons for the treatment typically start with talk of “quality of life” for the child. Really? Here
I’ve been given the opportunity to write in a main stream magazine’s web edition about growth attenuation (GA) otherwise known as the Ashley Treatment. I will be doing so and will keep you informed. While doing some research (to make sure I don’t sound too foolish …) I finally found the answer to the question “Has anyone
I hate when an anonymous blogger, in his or her anonymous persona, puts up an anonymous blog about an important topic and then people comment that the blogger has no idea what it is like to be the parent of a severely disabled young lady when in fact the author of the comment has no
I just read this touching post over at UnlockTheSecretVoice, it is entitled “Community.” And, yes, SingleDad has an opinion, glad you asked. Claire, she no more of Life With A Severely Disabled Child, (and we know why she needed to bail on that blog; are all men morons?) wrote, in part, in a comment on
When I was working towards my paramedic stuff, over thirty years ago, I spent some time in a trauma center’s emergency room. It happened to be about three blocks from an area officially called “The Combat Zone.” Some weekend evenings training there and I saw more than one would ever want to (at least if
We get to the GI department to see the same doctor we have seen for a dozen years. This is where we talk about any gastric reflux, food intake, nutrition, pooping, etc. A young lady comes to get us, and yes, you know what’s next (well, you do if you read this blog and pay
There are two concepts that are important in the on going discussions of growth attenuation (aka Ashley Treatment) as well as the lives of the severely disabled in general. What follows is one father’s opinion.