I received an email the other day from a new reader of this blog. With her permission, I am reproducing it here, with my answers / responses interspersed. Please, feel free to add your input in the comments. Thank you so much for your blog-I appreciate your honesty and the way you advocate for Pearlsky.
I have pretty much tried to stay out of all the stuff going on with that Bunny puke guy and the iPad controversy. The part that does intrigue me is that people are amazed that someone within “our community” would, in fact, be a puke (and I have no clue if, in fact, he has
Ever feel like you were being pulled in twenty directions? That’s what it is like around here. Tomorrow I am driving, sans Pearlsky, to see my mom (about 5 hours) and to do assorted household tasks for her. Until dad’s passing 8 months ago, she has never lived on her own. So a day of
The school summer camp was supposed to go so much smoother this year. An hour into the first day, I get a phone call. Remember, the lead teacher from the regular school year is part of the program as is the trained one-on-one nurse for Pearlsky (a cute 25 year old nurse, mind you, but
This lack of communication thing is killing me. And the worst are the times when I want to talk with her, and there is no answer, no response. Am I being ignored? Does she knowingly not respond? Does she not hear that I want her attention? Whatever the reason, the appearance of being ignored or
This article is in many papers around the world today; I am reproducing the BBC News version in this post. Not sure how to respond, other than to smile and pass the egg rolls. China mother is jailed for killing paralysed twin sons A Chinese mother has been sentenced to five years in jail for
Life is completely relative. Yeah, I have it tough, two severely disabled kids, zippo communication, epilepsy, evil school nurses, no spouse, blah, blah. You know. Others have it so much easier. Let’s see … Claire, an older mature normal kid, her disabled kid has some communication, she has a spouse to help, and is into