23 Jun 2009
The greatest danger for most of us is not that our aim is too high and we miss it, but that it is too low and we reach it. *
What are your goals for your daughter? The ultimate question from hell. Asked at every early intervention meeting, every IEP meeting. What a truly messed up question. The “goal” of the question is nebulous … but the reason for it is clear. Empowerment. Frankly, that’s crap. Don’t try to “empower” me, just fix my daughter.
16 Jun 2009
Thank you, S.T. and J.P.
I have mentioned that my pharmacy has abruptly been closed. My family has had at least 15 prescriptions a month filled at the old one for over 10 years, and never an error. At my request, the closed pharmacy transferred two prescriptions to another independent pharmacy in the area. The first one was for Diastat.
15 Jun 2009
I told you so!
Something came up with my son. Not a big deal, but needed to be dealt with. Remember my ex is out of the country for eight weeks, and as always, assured me she would be instantly reachable. You know, phones, internet, etc. yeah, right. Anyway, I call my ex. No answer, and it is around
14 Jun 2009
The unemployment rate just changed
This nanny has been with my daughter about a dozen times, if not more. She comes over this morning, a bit early and mentions that she got about 30 minutes of sleep last night. I don’t ask why. She is with me as I dress my daughter. Since it is not a great day out,
08 Jun 2009
5-Alarm Clock
About one year ago … It’s 4:00 in the morning and my phone rings. It is the facility where my son lives, about 70 miles away from me, about 4 miles away from where his mother was, staying in her condo there. Your son is in an ambulance on the way to the hospital. We
04 Jun 2009
Tears are the silent language of grief. *
Like any day, I get my daughter off to school and I take a shower. This day, the phone rings while I am showering … and the caller ID shows the school nurse. Your daughter is crying and we don’t know why. Can we give her Motrin? “Yes,” I tell them. And that was the
02 Jun 2009
To be happy, we must not be too concerned with others. *
So, her mom calls me around noon time, mainly to tell me stuff about her upcoming trip of which I care very little. At some point in the conversation she asks "How is she doing?" referring to our daughter. Well, she seized for over an hour last night. I then get this incredible rash of
01 Jun 2009
Shake, rattle and roll
Rita Rudner once commented, upon hearing of a woman in labor for over 24 hours, “I can’t think of anything I love doing that I’d want to do for 24 hours straight!” How long would you choose to have a seizure? A minute, ten? How about 72? How about having your brain taken over by