Don’t touch that cripple! (nor email her dad)

I hate working with DME (Durable Medical Equipment) companies. Most of them don’t get it … I constantly have trouble with the company that has supplied my daughter’s wheelchair, the same one that is supposed to support it. Things got so bad, I finally wrote a letter to the top guy, his email being on

“I never cease being dumbfounded by the unbelievable things people believe” ~Leo Rosten

Monday, December 3, 2007, I remember it like it was yesterday. I got my daughter all set for school, put her on the van, went back in the house, showered and was dressing when the phone rang. It was the high school nurse. I just want you to know I put up an ad looking

We made a grown man cry

It was a beautiful day today so I went for a long walk with my daughter today. We went to the new pharmacy, CVS. I figured I would introduce her to the pharmicist so he would have an idea what all the crazy meds are about. He came out from the back and I introduced

Incensed – not a pleasant smell …

Understand that the 1 on 1 aide that my daughter has at day camp is the same twit nanny that I fired a few weeks ago from the house. I really figured that with all the others around she could only do a good job. Also know that the camp director’s sister lives with him

I never took hallucinogenic drugs because I never wanted my consciousness expanded one unnecessary iota. ~Fran Lebowitz

So, my daughter is out of her Trazodone (non-essential yet very important) and her Depakene (as essential as it gets) will run out this weekend. She needs the brand name version of Depakene, the generic just does not work as well, and for that the insurance company needs a “P.A.” (Prior Approval) from the doctor.

Being an author is having angels whisper in your ear – and devils, too. ~Graycie Harmon

Remembering that my daughter cannot talk, walk, stand, point, confirm, do anything asked, do anything intentional … well, you get the picture. She goes to a summer camp that is barely acceptable. It does offer a thing or two she enjoys, being in the water for instance. The camp insists that her one-on-one aide write

And now for something completely different …

Not so much about my daughter, but yes, about life and our uphill battles around here. I have had the same guy cleaning my house for 22 years, every weekend for about 6 hours. At this point I love him like a brother, he attends our family stuff, etc. But he is “different.” In his

Moronic medical team of the year award goes to …

We get an appointment mid morning today for 2:00 as an “urgent care” visit in the adolescent clinic and arrive at 1:50. Because we were not called in until 2:55, we missed an important blood draw during her medicine trough, we missed her timely feeding (so she was getting cranky), she got her scheduled meds